Coping Strategies

One of my personal projects recently has developing a system to track and analyze my energy regulation. I’ve been trying to figure out if I can predict and even out the highs and lows I’ve been having lately with more better self accommodation. The jury’s out on whether I’ve made any significant breakthrough (and that’s a different post) but as always it brought me back to the question of instruction.

I wrote about my emotion-based instructional curriculum a couple of years ago and what I’ve been doing hasn’t changed significantly in the intervening time. But thinking about it from this perspective, there’s an obvious piece missing. There’s an obvious ableism embedded in that curriculum that I didn’t even notice. Nothing there teaches students to recognize the coping strategies *that they are already using.* Nothing there teaches them to understand how they might need to modify their current coping strategies to function more effectively in a neurotypical society. (Which, like it or not, is the one we live in.) It assumed that the student didn’t have any coping strategy (not very likely for my older teen students!) and tried to teach them the ones that neurotypicals thought were a good idea. Yet we know that the  best teaching is building on skills *that are already there* not trying to build new skills without a foundation.

It seems so obvious when I say it like that, doesn’t it? Time to put it into practice!

The Mask in My Teacher Toolkit

I try very hard to create a classroom that is welcoming of students natural ways of moving, of interacting with the world, and of expressing themselves. In the adult autistic community, we talk a lot about masking, and the effects of it on self-esteem. And then I watch my neurotypical colleagues, completely unaware of what they’re doing, expect those masking behaviors. And I watch myself use them all the time as well. And in makes me wonder, am I doing a disservice to my students by not teaching those skills?

Masking is a skill. The more skills you have, the more opportunities are available to you. But what if our students grew up knowing, not just that masking exists, but that it is a choice? The social skills curriculums currently out there teach “this is what you have to do” but how different would the educational experience of the next generation of autistic children be if we taught it as “this is what the NT population does/expects.” What if our behavior expectations where “here is how to do it/fake it” and “here are reasons/times when you might want to.” 

I know full well that my ability to pass, and thus have control over disclosure, has given me opportunities I might not otherwise have gotten. (There’s a reason this blog is anonymous.) My students may never pass for NT due to other disabilities, but don’t I owe it to them to give them the skills to try if they want to? When I have struggled with social interactions, I’ve gotten instruction (I, personally, found Michelle Garcia Winner’s Social Thinking at Work and Ian Ford’s Field Guide to Earthings particularly useful.) Why shouldn’t they benefit from the same opportunities? As a special educator, isn’t that my job? To make the general education curriculum accessible to my students?

But in Purple....

For years now, I have described myself as a “part time AAC user” but beyond my preference for communicating by text and email whenever possible, I’ve never taken any steps to communicate multi-modally outside the home. (At home, I use a combination of gesture, sign, objects, facial expression, and cat sounds in addition to speech. My husband has become an able translator over the years!)

I have the same communication software as my students use downloaded on my phone and tablet. (Ostensibly, I got it for school.) I’ve tried using it, but it’s way too slow to ever be functional for me. Also, I find myself simplifying my language in order to use the vocabulary that is available instead of choosing the exact words and sentence structures I want, which slows me down further and can obfuscate my meaning. And so, I do use it for school, but I don’t use it for me.

This past week, I finally purchased a text-based AAC app. I hadn’t been able to justify the expense to myself. After all, I talk. A lot. And I wasn’t really sure if I would ever use it outside the house. So I found one that had almost all the features I wanted and didn’t cost as much as the ones with all the bell and whistles. The first thing I noticed about it? I liked it a lot better once it was purple. In fact, when I set up my second device, getting the color right was higher priority for me than getting my vocabulary set up. That’s particularly interesting because I’m usually not a visual person at all. I tend to ignore avatars, backgrounds, etc. (My NLD exacerbates this tendency.) Yet, if it made that much difference to me, who usually doesn’t care about such things, how much do our students care? Our students who we bombard with color choices at every corner “to provide language opportunities?” How often do we even pay attention to the cosmetic aspects of their device? We use vocabulary color coding, but what about background colors? Case colors? Fonts? There are a lot of ways to personalize a device beyond content that we often overlook. 

I hear a lot that “we have to motivate the student to use the device/to communicate (or they won’t.)” What difference might it make if the student was able to set up the device to be more visually pleasing (or interesting) to them? I haven’t used mine in the wild yet. I haven’t needed to. (It’s vacation week. I haven’t actually gone out much!) But I’m motivated to. I keep wanting to add vocabulary that might be useful. I haven’t had that before. I never would have thought that being purple would have made so much difference.

The Gift of Flexibility

The rules that make up our social structure can seem arbitrary when participation is not intuitive: Go here now but not later. Touch this but not that. Put this here but not there. When you look for an underlying logic in order to understand them, as many autistic children and adults do, it appears they change on a whim. “Go with the flow” requires recognizing and understanding, or at least being able to follow, the “flow” of society, which is based on social norms - the very skill that eludes so many people on the spectrum. It’s really no wonder so many cling to routine, structure, and sameness and get upset when it is violated. From that perspective, it’s actually surprising more folks on the spectrum don’t spend more time in “fight or flight” mode. It is a constant battle to figure out how to live in a world that often doesn't make very much sense.

Engaging with the norms and expectations of the school and classroom environment is particularly challenging for several of my students. In particular, they do not recognize the logic behind sitting and completing an academic task, moving to another area, and repeating the demand. Both sitting and moving are non-intuitive demands. Both have, historically, had intensive intervention aimed at compliance with these demands. 

They often demonstrate their lack of understanding by removing themselves from the demand to engage in preferred activities which are both highly interesting to the student and engage the teacher in an interaction, thereby drawing both of them away from the interaction they do not understand the logic behind. What concerned me was students who were getting bigger and older (I teach middle school) and more aggressive. And we were the cause. (Of the aggression, teenage boys are going to grow like weeds whether we want them to or not.)

I met with the team and we got programs put in place to get everyone’s hands off the students unless there was a real immediate safety risk (e.g. about to be hit by a car!)

We got lots of alternative seating in place. More than enough for every student in the room. Ball chairs. Bouncy chairs. Rocking chairs. We stopped telling students to sit and started asking them where they wanted to sit.

We got some pretty ridiculous answers at first. On the table? On the heater? On the floor?

We said okay. We did our academic work there.

Sometimes students didn’t want to sit. They stood or leaned.

We said okay. We did our academic work there too.

It wasn’t perfect. Kids were still on the move a lot. Transitions were not flawless. But what changed almost immediately? The day we made this change, the aggression that was starting to become a problem disappeared overnight. We’re getting just as much work done as we did when we were following the compliance-based program with one difference: everyone, kids and staff, are happier. We’ve been at this for a couple of weeks now and an unexpected thing has happened: the kids are starting to sit. They are sitting in chairs and without being asked. The logic is simple really:

Stop fighting the kids and they’ll stop fighting you. It’s the gift of flexibility.

Building Learning Habits

One of the earliest ways we build positive learning habits is by pairing learning with the activities the student would prefer to be doing. For some students, that’s a first/then activity board, for others, that’s using high interest manipulatives. For students with significant anxiety or trauma around learning, that means pairing instructional demands with preferred activities (non-contingent reinforcement). In my current classroom, I have students using all three strategies. 

Using edibles for reinforcement, even non-continently, isn’t my preferred instructional strategy. But it’s a stepping stone to building learning habits. I have a student who, when school started less than a month ago, would tantrum every time we said it was time to do anything he perceived as “work.” He spent much of the day trying to get snacks out of his snack bag. We began pairing snacks from his snack bag with actively participating in academic work. Multiple times this week, I observed him to come independently to the table when told it was time for an academic task and sit with his snack bag expectantly waiting for the task. He is beginning to develop a new mental model and expectation of what school means. He is developing learning habits.

The next step has traditionally been hard for many of my students. These are students who are able to join learning activities, but do not persist in task completion. If the task becomes challenging (or boring) these students will mentally (or physically) “check out.” They do not (yet) have the learning habit of “seeing it through” probably because nobody has ever explained to them what the goal is that they are trying to accomplish. Unfortunately though perhaps unsurprisingly, most interventions (that should be a red flag right there!) for students who struggle with this learning behavior is compliance-based. The answer to “why should I have to do/finish this should never be “because I said so.” Targeted instruction in my classroom is focusing on teaching students about their goals and how to measure their own progress (short and long term). Creating progress monitoring habits will help students to persist in task completion without relying on compliance or building staff dependency.

More than content, teachers strive to instill a love of learning in students, especially those who do not see themselves as learners or who have not had positive experiences with school in the past. We do that by building relationships with our students and creating a culture of trust and risk-taking. We do that by teaching and fostering positive learning habits. Learning is about much more than ABC and 123.

The Limits That Make Us Soar

A former student of mine just transitioned into a new classroom. Her new teacher has set limits for her that make me uncomfortable from a philosophical and pedagogical perspective. Some of these are limits that I literally spent years working with staff to get them to understand why they were completely unacceptable in my classroom. It’s taking all of my willpower not to say something to her. But the thing of it is, that student is happy. She is happier than she was toward the end of her time in my classroom. She is happy and she is engaged in learning in a way that she and I had struggled with over that last year or so.

With a little perspective, it’s clear to see what has happened. In my quest to create a student-centered classroom, I lost too much of the structure and boundaries that make the classroom effective. If I’m honest with myself, I knew that. My data on student progress and student behavior over the second half of last year showed it pretty clearly.

It shouldn’t surprise me. I’ve known, as I’ve gone through this process, that I’ve consistently struggled to implement one of the most key pieces of a student-centered classroom: feedback. My students need to know what is expected of them, and how they are doing in meeting their goals and expectations. I need a way to show them. For progress on student goals, I’m thinking about creating visual goal monitoring pages in their program data books. Using picture supports, students can track by independence level or accuracy level increases (we take data on both) and can choose what they want to make public: progress, achievements, or nothing. I’ll try and post one to twitter when I get them made, hopefully next week, and will try to edit this post. (Blogger doesn’t seem to like image posting anymore.)

In order to provide more effective behavior feedback, I need to first re-examine for myself where the behavior limits should be in my room. The feedback I got from my students last year was that I didn’t give them enough limits, and that they found learning difficult in that environment.

What matters?

Student choice:

Students should be able to choose: where they work (learning station - may sometimes have to be restricted choice, depending on activity), who they are working with, which activity they are doing (from list of activities for that academic block)

Student safety (individual target behaviors)

Student task completion/participation

I can see how this could easily be represented to students using an interval data visual:

Activity Chosen

Location

Staff Member

5 minute interval safety tokens +++++

5 minute interval participation tokens +++++

(Again, I’ll try to post an image-based one to twitter when I have it, Blogger doesn’t play nice.)

The similarity between the behavior feedback visual I’m proposing and a traditional token chart is not escaping me. In fact, during the difficult time we had last spring due to the weakening structure associated with the school closing, one of the things I did for one of my students was pull out a token board he hadn’t used in over a year. He needed the visual to know how much work he was expected to do in order to help him stay regulated. Many of the tools in the ABA toolkit are very useful tools. Tools, by themselves, are not positive or negative, it is how they are used. Behavior tools must always be used to support student choice, self-advocacy, and body autonomy not to create compliance or restrict a student’s natural expression/movement in the name of “normalizing” behavior. The line of teaching “socially appropriate” behavior is a very thin one and must be walked with extreme caution and much input from the Autistic Adult community. We do not always fully comprehend the power of the tools we use. We need to listen to those who have had those tools used on them, just as we look at the results and reviews of any other new curriculum and program that we wish to adopt into practice (or material we chose to use with our home and family.) But to quote Levar Burton “You don’t have to take my word for it…” (ask another Actually Autistic person!)

Structured Feedback: #ObserveMe

As an educator, I value feedback, especially from other professionals who share my core teaching beliefs. I joined the faculty of my current school because of the mission based around student-centered teaching focusing on self-advocacy and meaningful independence for every student regardless of perceived intellectual ability. Because of negative experiences I’ve had with observers in my room at other schools, having visitors in my room makes me anxious. I feel judged. I automatically see the behaviors, the missing symbol supports, the student(s) not fully engaged in an academic activity at that exact moment: all the things I would have been criticized for at other placements. And I want to say, “I know all that! We’re working on it! Here’s what I *actually* want feedback on…” And that’s when I heard about #ObserveMe.

#ObserveMe was started by Robert Kaplinsky last year. (I think this is the original post here.) I first saw it on twitter. (Of course, it’s where I find everything new and cool in education!) The idea is simple: post a note on your classroom door inviting your colleagues in to observe and telling them what areas you would like feedback on. It feels to me like exactly the answer I’ve been looking for. The visuals I put on my door already tell someone entering a lot about what I value as a teacher: that’s intentional. My hope is that adding this sign will help to structure those interactions so I can finally get the feedback I am looking for to grow my practice.

The text of my #ObserveMe sign is below:

We are all learners in Room 1. Please come in and observe me. I would like constructive feedback on the following goals:

Student voice:

Are students making authentic choices?

Are we honoring all student communication (not just symbolic language)?

Instructional Process:

Are teacher demands clearly rooted in meaningful instructional context?

How could we change the instructional demand to increase learner independence?

Feedback:

Are we giving clear feedback to students that gives them a clear picture of the progress they are making toward their goal?

How can we make student goals and the path to achieve them more concrete and visual for our learners to understand?

Please #ObserveMe and help our learning community grow!

Self Determination through Choices

Several of my students had IEP goals this year around sequencing events on their daily schedule. Sequencing is an important pre-reading and pre-numeracy goal, and working with the familiar concepts of the daily schedule is a logical way to teach that skill. Its a common goal for students in my class and my students mastered it. Along the way, two learner types emerged: the Memorizer and the Requester. The Memorizer attempts to memorize the sequence - bathroom is always first, then reading, and so on. That works fine if the daily schedule never changes (spoiler alert: it does!) and if you always start at the beginning and go all the way to the end (not helpful if you want to check your schedule after lunch, for example.) The Requester sees the list of activities to be sequenced as a menu to be chosen from and will pick the items s/he wants to do - potentially demonstrating a false negative for understanding the sequence.

This year, I had 2 Memorizers and 1 Requester. All of them were able to demonstrate mastery of the concept of sequencing. So at the end of April vacation, my paraprofessional and I decided to try something new. We decided to throw out the structured classroom schedule and let the students create it. We had already been doing this a little bit: morning snack was optional and at different times (one student needed breakfast first thing, one frequently skipped it, and one needed to eat around an inclusion class.) We simply wanted to take it one step further. The new classroom schedule that greeted the students looked like this:

Some activities, like therapies, lunch and inclusion classes, have set times. The rest are listed as choices. Students can make individual and group choices about what to do when.

We’ve only been at this a week, so a lot more work needs to be done to scaffold the language of choosing activities, especially the peer interactions of choosing group activities. My students do not yet have the language to ask peers to join them in an activity or to bargain. But I heard lots of question words being explored on communication devices. We did a lot of language modeling: using those question words and the time words of “first” and “then” (familiar to our students from their sequencing experience,) moving symbols around on the classroom and student schedules as students made choices and then modified them based on peer choices.

Completed Picture Schedule

Empty Picture Schedule

Examples of student schedules before and after they are filled out.

My initial impression of this change is very positive. I felt like my students engaged in more instructional activities for more of the day. I will have to wait until I’ve had a few more weeks of data in order to see how much of that was our excitement to engage them in this new learning activity and how much was caused/supported by the change in classroom structure.

Two take-aways from the first week:

1. I may need to stack the deck a little bit or there are IEP goals we will never address. Right now I am taking this as feedback about areas of the curriculum that need to be addressed to make them more student-friendly. (e.g. Nobody picked math without prompting. However, the students did seem to like the new unit we started, so I’ll be curious to see how that affects their choices next week.)

2. Only one of my students looked to the classroom schedule when asked to choose what he wanted to put on his schedule, visibly having difficultly choosing something on his own. One of the Memorizers, this is my least physically independent student. More so than the other students in the class, this student is used to having his choices, not just made for him, but physically done to him. This is a poignant and important reminder about the importance of giving these students control over their lives, not just academically, but in every domain.