Coping Strategies

One of my personal projects recently has developing a system to track and analyze my energy regulation. I’ve been trying to figure out if I can predict and even out the highs and lows I’ve been having lately with more better self accommodation. The jury’s out on whether I’ve made any significant breakthrough (and that’s a different post) but as always it brought me back to the question of instruction.

I wrote about my emotion-based instructional curriculum a couple of years ago and what I’ve been doing hasn’t changed significantly in the intervening time. But thinking about it from this perspective, there’s an obvious piece missing. There’s an obvious ableism embedded in that curriculum that I didn’t even notice. Nothing there teaches students to recognize the coping strategies *that they are already using.* Nothing there teaches them to understand how they might need to modify their current coping strategies to function more effectively in a neurotypical society. (Which, like it or not, is the one we live in.) It assumed that the student didn’t have any coping strategy (not very likely for my older teen students!) and tried to teach them the ones that neurotypicals thought were a good idea. Yet we know that the  best teaching is building on skills *that are already there* not trying to build new skills without a foundation.

It seems so obvious when I say it like that, doesn’t it? Time to put it into practice!

Autistic Life Skills: Noise Blocking Headphones

Disclaimer: I receive no financial incentive to write this post. I don’t generally post product links because I assume you know how to use google. Sometimes I do, just to make my point clearer. I don’t get any compensation if you make a purchase using those links. The point of this post, as with all of this blog, is simply to share my experience in the hope that it will make education better for the students who come next.

Probably the most common association with autism and sensory challenges are the over-ear noise blocking headphones that many children and adults wear due to extreme sounds sensitivity. I’m not generally sounds sensitive (which is a very good thing since to say my classroom is loud would qualify in the runnings for “understatement of the year.”) However, I do get sound sensitive when I have a migraine or when my anxiety is very triggered. So, after a bit of research on the difference between noise cancelling and noise blocking headphones (I found this article particularly helpful) I decided to invest in a pair of Pro for Sho noise blocking headphones. (Primary positive attributes: under $20 price point and they came in purple!)

They worked exactly as advertised. My husband was able to watch Game of Thrones in the living room while I went about my life in the rest of the house without my being bothered by it in the least. (I may be the only person in the world, but I really don’t like Game of Thrones.) But they also had two other benefits that I didn’t expect, which are the point of this post.

The first was that wearing it seemed to have the effect of dampening all of my senses, not just my hearing. I assume that has to do with the way in which the sensory system is all interconnected. However, I was able to do several cleaning tasks, which are usually very draining due to the onslaught of tactile and olfactory input, and barely notice the effect.

The second, and this was the real surprise, is that I almost immediately started craving the input they gave. (I’m a very strong sensory seeker.) I wore them later in the evening when I was alone in the quiet house just because I liked the way they felt on my head and made the world sound.

I did not anticipate that this type of sensory support would have the same type of psychological benefits as stimming, but it does. I haven’t seen anyone writing or talking about that benefit before, and I think as parents and professional begin to understand the benefits on fidgeting and stimming on the neuro-atypical brain, we need to explain the other use of sensory interventions with that same model. I know it will be part of my explanatory arsenal going forward. (And those purple headphones are going to find a permanent home in my bag!)

Autistic Life Skills: Toothbrushing

Full Disclosure: I don’t get any money for telling you what products I use, like, or don’t like. My opinions are just that, my opinions. There are no product links on this page. I assume you know how to use google.

My goal, in this “Autistic Life Skills” series is simple. To, hopefully, provide a more comprehensive understanding of the complexities of developing skills that incorporate sensory challenges, so that other teachers and parents (and other autistics who struggle with those same skills) might find some guidance to approach the teaching of these skills with less frustration on everyone’s part. Hopefully, a way to end the episodes of “wrestling a crocodile” (as the parent of one of my students describes their nightly toothbrushing routine.)

As a child, I was lucky that toothbrushing was never a battle my mother chose to pick. I thought I was very clever in the ways I hid the fact that I wouldn’t do it from her. I wasn’t; she just chose not to fight me about it. Through the luck of good genetics and floride in the water, I never got a cavity, but that luck certainly had nothing to do with my (lack of) toothbrushing.

I was in my 30s when I stopped getting nauseous and sometimes physically sick at the dentist, because I was able to advocate for myself to not get any flavored pastes (they make me sick) and to skip the floride treatment (the texture and taste - yes I can taste it!) makes me gag.

I was nearly 40 when I finally developed a tolerance for the electric toothbrushes that the dentist recommended. I still hate the Sonicare ones and won’t use them. But I worked my way up with the pulsar ones (the vibrating ones that look like manual toothbrushes) and now can use the Oral-B electric toothbrush (well, the CVS generic version!) They have a smaller brush head that means the vibrational input in my mouth is more localized, and the handle doesn’t vibrate as dramatically, so I get the input (and cleaning power) without my whole face, hand, and arm vibrating, which I never could stand. I’m still waiting for the dentist to tell me that my toothbrushing has gotten good enough that I can stop going every three months. Maybe next time?

Why do I tell that story? Because most of my students do not have the language to explain things as clearly as I just did. And yet, as verbal and generally self-aware as I am, look at how long it took for me to figure it out and find relief. I’m not saying that everyone with sensory challenges experiences dental hygiene the same way I did. I’m saying these are the places to start looking when a student struggles.

Especially when working with an older student, it’s important to recognize that there is likely a trauma component to the resistance to learning this skill. Do your research: what’s been tried in the past? How does the routine go at home? What are dental visits like? For many of our students, it’s a battle of wills with the parent at home, and either restraint or sedation at the dentist office. This is a breeding ground for trauma. You can’t start with sensory desensitization, or do sensory desensitization alone, and expect it to be effective. It might be effective in the classroom if they have a positive relationship with you, but it won’t transfer to the home environment. You have to work with the student and the parent to build trust around the routine and more positive associations.

What does that look like in practice?

We start by getting the student to hold the toothbrush.

Then we work on bringing to their face (any part accepted)

Slowly we work toward bringing to the lips.

Next is getting them to open their mouth.

Once they will hold it in their mouth for a count of 10 we can start putting it in each section of the mouth.

Then work toward top and bottom of each section.

Only after that do I introduce the “brushing” motion.

Some students can and will skip steps.

Some students do better starting with the vibration on.

The vibration scares some students away (like it did me.)

For some students we alternate: do each step without and then with vibration before moving on to the next step.

That’s going to depend on their sensory profile, and also where their sensory regulation is that day. (I know I’m more sensory defensive when I’m anxious or tired.)

Toothbrushing is a challenge, but it shouldn’t be a battle. Take on the challenge, work with your student, but know when to pick your battles and don’t make it a battle you choose to pick. 

Reflection

I haven't blogged much (or at all) this spring. The school I was working at closed, and my attention was focused on my students: giving them the best last year we could have, finding them new placements, and supporting meaningful transitions. Plus, I had to find a job for next year. It didn't leave a lot of time for blogging or reflecting.

I started writing letters to my next-year's-self last year when I saw the idea on Twitter. Looking back this year it was really powerful to see what I was focused on/worried about, and how much of that is even on my radar a year later. I highly recommend it as a tool for every teacher. I'm starting a new journey this year. I'm really excited about it. As I start on this journey, I want to share with my future self and with all of your this nugget from my current-school's-teacher-self.

This year, you were forced to go back and reassess a lot of older skills that you'd abandoned or forgetten. The use of the cooldown book/room. Sensory and reinforcement strategies. Low tech teaching strategies in general. These are important teaching strategies to have in your arsenal. Some of the most fun and innovative teaching you have done over the last 4 years did not involve any more fancy technology than the students' communication systems (and maybe a camera to document the event.) It's not about the tools, it's about the learning. And more importantly, it's about what tools make the student most independent. For your class this year, that was absolutely low tech tools, which technology used primarily to document and share, not to create. You will need to remember these lessons as you take on a class that is currently doing a lot of DTT. Why are they doing DTT? because it is working for them! You need to keep an open mind about using the most effective strategies to teach your learners. Remember, you did a fair amount of DTT your first year at Your Current School too, because according to their previous teacher it was what was working for them. And then you moved away from it because you found other strategies more effective. You need to make sure you are using your data and not your prejudices.

Teach with your data and not your prejudices. It is good advice for all of us.

Universal Design for Professional Learning

I usually use this space to talk about student learning, but I want to take a moment to talk about an equally important topic: professional learning for teachers.

There is a lot of talk in the twitter chats I frequent about the benefit of the EdCamp philosophy of professional development. I certainly understand where my fellow teachers are coming from: I have sat through my share of speakers talking about the same basic strategies that I have been using for years or about strategies that are not meaningful for my student population without such significant modification that they lose the essence of what the presenter is trying to get at. I love the idea of teachers sharing what really works. That's why I like twitter chats. However, they lose me when they start going on about how the face-to-face interaction is so much more valuable.

The thing is: text is a lot easier for me to navigate than face to face interaction. I'm not convinced I really will get more out of it than a twitter chat. It's quite possible I'll get less. And yet, whenever I say I haven't been to one yet I get multiple replies telling me how it's so wonderful and why I should. I want to ask those teachers to stop for a moment and examine their privilege.


I'm not saying that EdCamps need to change or that they can afford to provide more accommodations (they are free events.) One of the nice things about the current state of professional development is that we have such a diverse menu of options to choose from: I'm not limited to the one speaker my school brings in this year. My point in writing this post is to point out that every teacher makes their own choices of what professional development to pursue and in what format for their own reasons. What works for one person may be very much the wrong answer for another. The beauty of Universal Design is that we can each chose not just the content but the format that works best for us without each person having to request specific accommodations each time.

We need to be flexible enough thinkers to remember that the content and format that works best for us doesn't work best for everyone. We also need to remember to seek out those voices that are not accessing the same formats we are using (for whatever reason) and make sure they are being heard too. We may not agree with what they have to say, but there may be a very good reason their voice isn't being heard in the forums we're standing in. If our mission is really about teaching all students, then we had better make sure that we are reaching all teachers when it comes to professional development and the sharing of ideas.

Losing Control

Last week at #atchat, I was having a conversation with Ricky of www.atmac.org about the challenges of teachers who fear technology in the classroom, and who fear their students being more capable with the technology than they are. That got me thinking, and I said it at the time, the essence of that fear is teacher fear of losing control over the classroom dynamic.

It is common knowledge that every first year teacher struggles with classroom management. It's one of those rights of passage of first year teaching. There's a teaching urban legend that says "don't smile until October." Great emphasis is put on having an orderly, well controlled classroom.

In special education, this emphasis is paradoxically increased. Because our students struggle with the basic skills of self-regulation that come effortlessly (most of the time) to students in general education, most special education classrooms are filled with behavior charts and other paraphernalia of teacher-directed behavior support programs (incentive programs, reward/consequence programs, positive behavior supports..... the names and philosophies change - sometimes for the better sometimes for the worse, but all are predicated on the same concept: student must do what teacher says: top down.)

How many IEP goals have you seen that have goals for following (x step) directions? Or other goals of compliance. Participation in a structured activity goals? That's a compliance goal too. We spend a lot of time in special education teaching compliance.

And then, at some point, in "progressive" special education classrooms, somebody gets the idea of teaching self-regulation. It rarely goes well. The students are unprepared for there being no "right" answer. The teachers do not want to allow the behavior to become disregulated, so they control the choices, reinforcing the students' belief that there is a "right" answer and their own belief that their students are "too low" or "too routine oriented" to understand how to self-regulate. Because without the behavior plans and structure the class would get out of control.... right?

Wrong.

The problem is not that the students are "too low" (I don't believe such a thing exists) or "too routine oriented." The problem is trying to teach self-regulation in a context, and based on a foundation, that does not support it. The problem is that classroom culture of behavior charts.

I am not saying that we have to do away with extrinsic motivators (rewards) for all our students in every context. I'm not saying visual behavior supports aren't important - they are. But for most of the day, if students aren't motivated to learn the material, we need to find a way to make the material motivating. For example, I have a student who has been acting out during math: he struggles with numbers. We are learning about ratios as part of the 7th grade common core standards. He has been throwing every manipulative I try to use to teach this skill. But he loves time and clocks. So we started talking about the ratio of time to distance. He loves starting and stopping the stopwatch as we check the time to travel various distances. He still doesn't love telling the numbers, but he's more motivated to do so now that they are times.

More to the point, puts my timer to far better use than it was being put giving him check marks for staying in his seat and keeping his hands to himself to earn the swing when math was done. He still might ask for the swing after math, but it's not contingent any more. Sensory breaks are important, and now he's learning both math (which he wasn't before) and early self-regulation skills.

As my students build their skills in the areas of self-regulation, self-advocacy, and self-determination (all areas of the curriculum represented on every IEP in my classroom) I don't expect I will find anyone is "too low" to make progress and develop skills. And I'm not worried about losing control of my classroom to do it, because I won't be giving up any behavior control in order to for them to practice those skills. They are working on them every day in the classroom already. My students are the primary stakeholders in what goes on in my classroom: if they're not invested in learning, I don't waste my time teaching: the standards only tell us what to teach, not how.