Sunday, July 21, 2019

Communication Badges: A More Nuanced Approach

I’ve written about Autistic Communication Badges before. My first attempt to implement them in the school environment was a total bust. (I couldn’t find a way to functionally implement it that was both safe and useful.) Quite similar to my first attempt at creating a classroom-wide communication accommodation actually. That one also failed spectacularly.

I’ve also written a lot about trying to teach self advocacy and body autonomy to students with significant needs. I’ve generally been impressed with what my students have been able to learn and demonstrate. But, by a chance of circumstances, I got to see what happened when one of those students left the environment where the staff was trained to respect body autonomy and to support self-advocacy. If those skills remained, they weren’t recognized or respected. I learned that my students did not have the skills to stand up to authority who tried to take away their rights. I also learned that they needed clear, unambiguous tools to use in their own defense.

So, when September starts, I am planning to reintroduce the Communication Badges, with one significant difference. This time, I’m creating a whole class set for teachers and students. For teachers: It will help students understand who is available to ask for help. It will help other teachers/specialists know who is available to talk to (or who needs help). For students: It will help teachers and peers know who is ready and who needs more time. It will let teachers know who needs more support and who needs to be left alone. 

These are skills we need to teach. One of the biggest challenges, especially when working with students who have difficulty with expressive communication and who express emotion in non-standard ways is to find a way to bridge that communication gap so students can find the support they need and reject the support that is unhelpful.


It’s not a cure, but communication badges might just be a start to helping bridge that communication gap in a way that respects all communication.

Monday, July 15, 2019

Queer Eye: A Problematic Relationship With Disability from the Start

There’s a new episode in the upcoming season of Queer Eye that’s getting, well deserved, derision from the disability community for the title “Disabled But Not Really.” The primary frustration I’ve heard is that Queer Eye has steadfastly ignored the Disability community for so many seasons and episodes, and then chose this, extremely problematic, individual to highlight as their one “disabled makeover.”

My argument is simple. Queer Eye hasn’t been ignoring the disability community. They’ve had a problematic relationship with disability throughout the run of the show. 

Many of the individuals they have made over have explicitly said during the episode that they currently have or previously had a diagnosis of depression. Depression is a real mental illness. It is a disability. But the way Queer Eye treats it, giving them a fresh start is the cure. (It’s not.) There’s a reason that the dramatic “after the makeover” parties that end the episode are videos of the day after the intervention, and not a week or month or year later. That kind of intervention is exciting and fresh, but doesn’t have long term effects. I’d love to see them do a “Queer Eye: One Year Later” special and prove me wrong, but without follow-up intervention, the research is on my side.

The other problem the show has with it’s approach to disability is Karamo and his entire approach to the makeover project. He’s a charismatic guy and it’s easy to see why people connect with him. But his fundamental problem is he’s a one trick pony. To look at him, it’s obvious he takes fitness seriously. So it’s no surprise that he uses physical activity to “get people out of their comfort zone” in almost every episode. I recognize that we need that “made for TV emotional moment” for viewership. But the show misses the opportunity, every single time, to acknowledge that the “aha” moment is just the beginning of a much longer process, and that process won’t happen automatically. Every time, the show misses a real opportunity to reduce stigma and provide awareness about mental health resources that could provide long term benefits not just for the individual on the episode but for all people living with mental illness.


Queer Eye has made a start in trying to be more inclusive. They have simply fallen prey to what most of media falls prey to. Lack of representation or consultation within the production team. They don’t know what they don’t know. Much like Karamo only really knows how to get people out of their comfort zone and get that emotional moment using physical tools to get that “aha” moment, the show only knows how to portray a snapshot/momentary intervention. I encourage the show to reach out and partner with groups like NAMI to provide resources and connections that have the power to truly change people’s lives. Queer Eye has the voice. They say their goal is to promote inclusion and acceptance. My hope is that they learn from the feedback they have gotten from the disability community, step up, and use that voice to promote the resources that will create inclusion and acceptance for ALL.